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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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I'll be thinking of you tomorrow Jenni.
Hope something can be done for your legs.
Love ,Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Jenny Hope all goes well tomorrow. To have pain at night, is the worst, I do feel for you must be terrible. Its good the toxyloxy is working so well, just got to sort the legs out  Julia xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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for tomorrow some help be great to relief that leggy nervy pain,good news ckmiza working well for u to feel more well. prayers. gentle hugs lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Such lovely news to read as I come on the forum! Will be saying some prayers for you tomorrow!
God Bless,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Thinking of you Jenni and hoping the doc can do something to help.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Good luck for today jenni prayers gentle hugs melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 64 Location: Sussex
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Dear Jenni,
So glad the cimzia went well, I hope you continue to improve...am keeping everything crossed for you that can be crossed!
Good Luck Ellie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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A quickie post to say it went ok, really. Nice new rheummy nurse. I didnt actually see the dr but his assistant dr says if lumps/ weakness no better when the cimzia is at full strength (end of August for that) then will have to think about it again...
pains in tum and bowel things are to be investigated in gastroscopy. (but that is a camera into your stomach with the ulcer in it- not up the other end...) I wonder if he thinks I am under the gastro team for this? Well, Im not- I will ask them when I go for the next gastroscopy on the 5th August
Weakness in the muscles is increasing and the hardness is now in both legs and forearms. Joy!
Top it all, the next appt to see my chief rheummy (non twit division) is in July- oooh goodie I thought- no! July 2011.....!!!!!!! HAHAHAAHA she cackles madly as there is nothing else to do.
Bloods though are coming down- ESR and CRP now down to 41 and 39 so that cimzia is working on the RA= WONDERFUL!
Anemia flagged all over the place and there is a possibility I might have developed celiacs disease that they will check another day. Had a load more bloods. Got the other bloods to do over the next few wks and nice nurse says any other issues, ring her and she will try and fit me in.
I am going for next whack of cimzia next thurs.
Apparently the endocrine results make interesting reading, amongst other things I make 0.0 testosterone for a start and I am thankfully seeing the endocrine Biggest Chief (who I have never met) on the 30th so I will be hounding them about things.
Anyone knows what this means in a pre menopausal woman?
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jenni Pleased it all went well ... at least I think that's what you're saying! So much going on in your body it's hard to keep up, how do you remember?!! At least things generally are moving in what seems to be the preferred direction or things are set to happen. It's great news about the Cimzia, fingers crossed there is continuing improvement. Hope the gastroscopy goes well. Sounds like you may need some Testosterone Replacement Therapy! Don't know much about it but I know that testosterone increases bone density and helps avoid osteoporosis. Think it's quite an important hormone that declines naturally with menopause but clearly you could do to hold onto yours a while longer! Lyn xx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Jenni,
Glad it went well, at least things seem to be moving for you now.
I don't know much about testosterone either but I know that even us women need some! You'll have to pinch some of Michael's!
Good luck for the gastroscopy.
Love, Doreen xx
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Rank: Advanced Member Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Jenni
Sounds all good news overall - especially with your levels becoming so low
If I haven t lost the plot ( this weeks been a bit  I caught my sons virus on anti - bio , I think you are off to hydro tomorrow.
If so, hope all goes well, I ve started doing it at my local health club ( they ve let me join at the over 60' s rate " young at heart " ) which is very reasonable. I use the jacuzzi brilliant on my shoulders as they get so painful, and then have a gentle swim - I don t do much else for myself, so it keeps me positive too  and is helping all round really.
Julia xx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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good news overall ,see what your saying re more cimiza full whack may do trick re legs. good luck bloods,gastroscophy and endocrine chief. hugs melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 1/29/2010 Posts: 264
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Jenni great to see that things are beginning to improve for you in some areas, you so desrve to have something go right for you, will keep everything crossed that it continues
best wishes
Sheila
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 176
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I heard something this week that was talking about testoserone, saying that the keeping a watch on the levels of that and oestregen could help avoid the Hot Flushes. Small detail for you, but ....
SO pleased they are keeping a closer eye on you (apart from 2011)
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Rank: Advanced Member
Groups: Registered
Joined: 1/7/2010
Posts: 44
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hi Jenny so glad you are a doing well on cimzia, you & me both I had my first injections this Tues..My husband said he had,nt heard me so cheerful for at least a year! Shame about your twit of a doc.Any chance you can have someone else.I remember you giving me that,good advice,2 yrs ago It took me a long time to try another doc.Wish I had done it before as its changed my life big time.Hoping your legs improve soon.So sorry your in such pain, but good about the cimzia. take care love & hugs Rosexx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Jenni - Pleased to hear the docs are working together to find some sort of solution for you. Maybe I have missed somthing but did they tell you what the harness and pain in your arms and legs is caused by?
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Lol - you always make me laugh Jenni despite everything you are going through. I hope you were on your best behaviour for the physio and he didn't make you suffer.
Julie
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